Agencies & Organizations

Following are agencies and organizations that are valuable resources for you to receive information, support and assistance – whether you are a family caregiver, a professional caregiver, or looking for additional information on issues related to family caregiving.

• Caregiver Organizations, Information, Advocacy and Support Resources
• Caregiver-Specific Websites
• Caring for Elders
• End-of-Life Planning, Hospice and Bereavement Information
• Advocacy Assistance
• Health Insurance: Prescription Assistance Information
• Homecare Agencies
• Assisted Living, Nursing Homes, and Residential Care
• Medical Transport and Hospitality Housing
• Respite Resources
• Training for Family Caregivers
• Disease Specific and Health Related Agencies and Websites

Finding Resources in Your Local Area

Don’t forget to find out what services and organizations are available in your local community. Even if you think you will not qualify for specific services, agencies may be able to make referrals to other organizations which may be of assistance.

• Check the county government listings in your local phone book for information on agencies

◦ Health and Human Services Department
◦ Social Service Department
◦ Public Health Department
◦ Social Security Administration
◦ Medical Board
◦ Mental Health Department

• Access governmental agencies and organizations online.
• Contact the social service department of your local hospital or clinic.
• Locate adult daycare centers and faith-based agencies.
• Locate the local chapter of disease groups (i.e. American Heart Association etc)

Caregiver Organizations, Information, Advocacy and Support Resources

Children of Aging Parents (CAPS)
800-227-7294
Website: www.caps4caregivers.org
CAPS assists caregivers of the elderly with information and referrals, a network of support groups, and publications and programs that promote public awareness of the value and the needs of family caregivers.

Family Caregiver Alliance (FCA)
800-445-8106
Website: www.caregiver.org
e-mail: info@caregiver.org
FCA is the lead agency in California’s system of Caregiver Resource Centers. FCA provides support and help to family caregivers and champions their cause through education, services, research and advocacy. Services are specific to California, although information can be accessed nationally.

Family Voices, Inc.
888-835-5669
Website: www.familyvoices.org
Family Voices offers information on healthcare policies relevant to special needs children in every state.

Friends’ Health Connection
800-483-7436
Website: www.48friend.org
Friends’ Health Connection links persons with illness or disability and their family caregivers with others experiencing the same challenges.

National Alliance for Caregiving
Website: www.caregiving.org
Although not an organization that helps family caregivers directly, The National Alliance for Caregiving’s Website helps family caregivers learn about information, videos, pamphlets, etc. that have been reviewed and approved as providing solid information.

National Family Caregivers Association
800-896-3650
Website: www.thefamilycaregiver.org
e-mail: info@thefamilycaregiver.org
CAN is a national nonprofit organization dedicated to empowering family caregivers to act on behalf of themselves and their loved ones, and to remove barriers to their health and wellbeing. CAN concentrates its efforts in three primary areas: education, building community, and advocacy. For more information visit: www.thefamilycaregiver.org.

Rosalynn Carter Institute for Human Development (RCI)
229-928-1234
Website: www.rci.gsw.edu
RCI provides educational programs for caregivers, conducts research, and disseminates information about caregiving.

U.S. Department of Health and Human Services
Website: www.healthfinder.gov
A federal Web site designed to help people stay healthy. Healthfinder.gov features links to more than 6,000 government and nonprofit health information resources on hundreds of health topics including personalized health tools such as health calculators, activity and menu planners, recipes, and online checkups. In addition, the site offers tips for caregivers and health news. Information is provided in English and Spanish.

Well Spouse Association
800-838-0879
Website: www.wellspouse.org
e-mail: info@wellspouse.org
Well Spouse is a national membership organization that gives support to husbands, wives and partners of the chronically ill and/or disabled. Well Spouse has a network of support groups and also a newsletter for spouses.

Caregiver-Specific Websites

There are a variety of websites which offer information and support for family caregivers. Websites with key information and support for family caregivers include:

AgingCare.com
239-594-3235
Website: www.agingcare.com/
e-mail: editor@agingcare.com
AgingCare.com helps people caring for elderly parents find support, resources and information, as well as a place to connect with other caregivers. AgingCare.com has a comprehensive collection of articles, news, product information, as well as a team of elder care experts who answer the many tough questions caregivers have about caring for their loved ones. Most importantly, AgingCare.com provides a community in which caregivers can connect with others in similar situations, to share ideas and help each other through the tough times.

AGIS Network
866-511-9186
Website: www.agis.com/
e-mail: info@agis.com
AGIS.com provides education, support, expert advice, local resources and a vibrant community for caregivers and families of the elderly.

Allsup Medicare Advisor®
888-271-1173
Website: www.allsup.com/nfca.aspx
e-mail: medicarehelp@allsupinc.com
Allsup Medicare Advisor is a fee-based Medicare plan selection service helping Medicare eligible individuals, either alone or with their caregivers, to choose the Medicare option that best meets their needs. CAN Members are eligible to receive a 20% discount.

American Association of Caregiving Youth
800-725-2512
Website: www.aacy.org
The American Association of Caregiving Youth is the only national resource that is solely dedicated to providing support and solutions to the challenges experienced by children who are sacrificing their education, health, well-being and childhood to provide care for family members who are ill, injured, elderly or disabled.  With support in school, out of school and at home, this otherwise hidden population of children become educated, healthy, productive adults.

CareCentral
Website: www.carecentral.com
CareCentral is a personalized web service that allows users to create a private, secure online community for loved ones during significant health events. It is a free tool to update friends and family, organize and schedule offers to help, and encourage messages of hope, providing support when it is most needed.

CareConnection.com
Website: www.careconnection.com
CareConnection.com is Website devoted to family caregivers, with up-to-date health news, elder care specialists, experts, insurance help, and coping advice. The site, owned by HealthCentral.com, offers in-depth resources from trusted sources, interactive tools, and connections to leading experts and caregivers who share their experiences and inspiration.

Caregiver.Com
800-829-2734
Website: www.caregiver.com
e-mail: info@caregiver.com
Caregiver.com produces Today’s Caregiver magazine, the first national magazine dedicated to caregivers, the “Sharing Wisdom Caregivers Conferences”, and Website which includes topic specific newsletters and online discussion lists.

Caregivinghelp.org
773.381.6008
Website: www.CAREgivinghelp.org
Email: CAREgivinghelp@cje.net
CAREgivinghelp.org is free, interactive website featuring short video and text educational modules on a variety of caregiving topics, frequently asked questions that cover the different phases of caregiving, an online community monitored by a geriatric care specialist, exercises to help caregivers “take a moment” for themselves, and a comprehensive listing of resources.

CarePages
888-852-5521
Website: www.carepages.com
CarePages are free, private web pages that make it easy to reach out and receive messages of support and to stay connected to family, friends, co-workers and others who care about you and your loved one. The service is available to anyone caring for a loved one, but may be particularly helpful to those who have recently found themselves in a care giving role.

Centers for Medicare & Medicaid Services (CMS)
Website: www.medicare.gov/caregivers
Ask Medicare will help family caregivers access and use valuable healthcare information, services and resources. This new CMS initiative will feature a one-stop Web page for caregivers, providing easy access to useful information about Medicare and other essential resources to help with family caregiving including links to key partner organizations that assist caregivers and beneficiaries, and will present personal stories from caregivers in the community.

Disability.gov
Website: www.disability.gov
A federal government website providing easy access to disability-related information and resources, Disability.gov has links to relevant programs and services offered by numerous government agencies. It is designed as a one-stop website where people with disabilities can easily find the resources they need to fully participate in the workforce and in their communities. Included is a state and local resources map, which makes it easy to locate disability-related information in specific parts of the country.

Family Caregiver Alliance (FCA)
800-445-8106
Website: www.caregiver.org
FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.

The Healing Project
Website: www.thehealingproject.org
Email: amy@thehealingproject.org
The Healing Project is dedicated to providing support, education, resources, and help to those who face life-threatening and life-altering diseases and encourages those who have a personal story to share can submit an essay that will provide insight, hope, courage, and healing to those who may be newly diagnosed or living with the disease.

Home Instead – Caregiverstress
Website: www.caregiverstress.com
While family caregiving is often very rewarding and a bonding experience, it can also be stressful and cause tension within families. Home Instead Senior Care provides this informative Website to help family caregivers find ways to cope with caregiver stress, in order to make their role more rewarding. A caregiver who takes care of herself or himself – body and mind – will ultimately be a better caregiver to a loved one.

Homecare Agencies – Right at Home
Website: www.rightathome.net
Right at Home is a national in-home care and assistance agency that provides your loved ones with the care and attention they deserve in the comfort of their own surroundings. Our local offices provide well-trained, insured and bonded caregivers for a variety of elder care services, and manage that care locally on your behalf. Whether you are seeking help with basic home maker services, personal care, or light skilled nursing, caregivers with Right at Home deliver quality care that can help your loved ones remain independent and fulfilled.   Visit www.rightathome.net to learn more and to locate an office.

ITN Men’s Caregiver Support Group program
Website: http://mlberg.spaces.live.com/
Email: 
mlberg.caregiver.blog@gmail.com
ITN (In Their Names) seeks to help men build their communication skills to become better caregivers. This is done by learning to share their stories with others, developing abilities to cope, making flexible and realistic plans, and gaining confidence as a caregiver. ITN was created as a step-by-step guide for men to develop a caregiver support group within their own communities.

Lotsa Helping Hands
Website: www.nfca.lotsahelpinghands.com
Email: info@lotsahelpinghands.com
Lotsa Helping Hands is a volunteer coordination service for friends, family, colleagues, and neighbors to assist loved ones in need. It’s an easy-to-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meals delivery, rides, and other tasks necessary for life to run smoothly during a crisis.

National Family Caregivers Association (CAN)
800-896-3650
Website: www.thefamilycaregiver.org
CAN is a national nonprofit organization dedicated to empowering family caregivers to act on behalf of themselves and their loved ones, and to remove barriers to their health and wellbeing. CAN concentrates its efforts in three primary areas: education, building community, and advocacy. For more information visit: www.thefamilycaregiver.org.

The National Resource Directory
Website: www.nationalresourcedirectory.org
Developed by the Departments of Defense, Labor and Veterans Affairs for wounded, ill and injured service members, veterans, their families and families of the fallen, and those who support them. The Directory provides over ten thousand services and resources available through governmental and non-governmental organizations to support recovery, rehabilitation and reintegration into the community.

New Health Partnerships
Website: www.newhealthpartnerships.org
New Health Partnerships (NHP), a program of the Institute for Healthcare Improvement, is spreading collaborative self-management support, a system of care that promotes patient/family caregiver/provider partnerships to transform care for the chronically ill. The site offers valuable tools and resources that can be easily downloaded by patients, family caregivers, and their health care team

Next Step in Care
Website: www.nextstepincare.org
Offering a range of guides and checklists—most intended for family caregivers of persons with serious illness, with some specifically for health care providers—designed to make patients’ transitions between care settings such as rehab to home or home to hospital smoother and safer.

ShareTheCaregiving – aka Share The Care
Tel: 212-991-9688
Website: www.sharethecare.org
Email: info@sharethecare.org
ShareTheCaregiving Inc. is a grassroots organization dedicated to preventing “caregiver burnout by promoting and educating people about the benefits of group caregiving using the SHARE THE CARE™ model.”

Strength for Caring
866-466-3458
Website: www.strengthforcaring.com
Strength for Caring is an online resource and community for family caregivers that helps family caregivers take care of their loved ones and themselves. Strength for Caring is part of The Caregiver Initiative, created by Johnson & Johnson Consumer Products Company, Division of Johnson & Johnson Consumer Companies, Inc.

Video Caregiving
Website: www.videocaregiving.org
A visual education tool for family caregivers of loved ones with Alzheimer’s Disease, strokes or other physical disabilities. The site features exclusive documentary-style videos, created by a team of award-winning film producers, which follow real life people as real life stories and issues unfold. Here caregivers find tools to better understand and deal with their situation, and let them know that they are neither isolated nor alone in their struggle.

 Caring for Elders

Vital information and possible support services for the elderly can be obtained by contacting your local county office of senior services or elder affairs as well as your local social service department. Area adult daycare centers may also provide information on resources for the elderly in your area. These numbers can be located in the governmental pages of the phone book or through a web query.

AARP
800-424-3410
Website: www.aarp.org
AARP supplies information about caregiving, long-term care and aging, including publications and audio-visual aids for caregivers.

AGIS Network
866-511-9186
Website: www.agis.com
e-mail: info@agis.com
AGIS.com provides education, support, expert advice, local resources and a vibrant community for caregivers and families of the elderly.

Eldercare Locator
National Association of Area Agencies on Aging

800-677-1116
Website: http://www.n4a.org or http://www.eldercare.gov
Eldercare Locator provides referrals to Area Agencies on Aging via zip code locations. Family caregivers can also find information about many eldercare issues and services available in local communities.

Home Instead – 40/70 Rule
Website: www.4070talk.com
What does a grown daughter say to her dad when he’s hit a light pole with the car? How does an adult son ask his mom if she’s taking her medications like she should? And how do siblings approach their parents about needing more help at home? These issues can challenge even the family where communication is free and open. Talking sooner is better than waiting until a crisis has occurred. That’s what the “40-70 Rule” is all about. This advice is designed to help adult children and their aging parents deal with those sensitive topics that often make conversations difficult. The idea is that if you’re 40, or your parents are 70, it’s time to start talking about the issues of aging.

The National Association of Professional Geriatric Care Managers
520-881-8008
Website: www.caremanager.org
Geriatric care managers (GCMs) are health care professionals, most often social workers, who help families in dealing with the problems and challenges associated with caring for the elderly. This national organization will refer family caregivers to their state chapters, which in turn can provide the names of GCMs in your area. This information is also available online.

U.S. Administration on Aging
202-619-0724
Website: www.aoa.gov
The Administration on Aging is the official federal agency dedicated to the delivery of supportive home and community-based services to older individuals and their caregivers. The AoA Website has a special section on family caregiving.

End-of-Life Planning, Hospice, and Bereavement Information

Aging with Dignity
888-5-WISHES (594-7437)
Website: www.agingwithdignity.org
Aging with Dignity publishes the Five Wishes Living Will document, a very user-friendly and comprehensive document that meets legal requirements in 35 states.

Caring Connections
Website: www.caringinfo.org
Caring Connections provides free brochures on end-of-life topics including advance care planning, caregiving, hospice and palliative care, pain, grief and loss and financial issues. Caring Connections also provides Advanced Directives for all states.

HospiceDirectory.org
800-868-5171
Website: http://hospicedirectory.org/
Online consumer database that lists hospices in North America and the U.S. All hospices are listed at no cost. It is a free service that assists families and individuals in locating a hospice within their community quickly. Also provides reliable information about hospice and end-of-life care to consumers.

Hospice Foundation of America
800-854-3402
Website: www.hospicefoundation.org
The National Hospice Foundation hosts an annual teleconference on issues of bereavement, and has publications on grief and bereavement.

The Compassionate Friends
877-969-0010
Website: www.compassionatefriends.org
This group offers telephone support and understanding to families who have lost a child. They maintain a resource library and have a national chapter network and newsletter.

U.S. Department of Health and Human Services
National Clearing House for Long-Term Care Information
Website: www.longtermcare.gov
e-mail: aoainfo@aoa.hhs.gov
The National Clearinghouse for Long-Term Care Information provides information on planning and financing long-term care including planning for end of life care, and all major types of public and private financing to help cover long-term care costs.

Health Insurance: Prescription Assistance Information

Family caregivers can contact their county or state Department of Health and Human Services for financial programs which may provide assistance for acquiring health insurance and prescription medications. Other possible financial resources may include social service agencies such as Catholic Charities, the Association of Jewish Families, and Children’s Agencies. Local chapters of voluntary health agencies may also offer financial support programs and/or information on how to apply for such programs.

AGIS Network
866-511-9186
Website: www.agis.com/
e-mail: info@agis.com
AGIS.com provides education, support, expert advice, local resources and a vibrant community for caregivers and families of the elderly.

Benefits Check-Up and Benefits Check-Up RX
Websites: www.benefitscheckup.org
A service of the National Council on the Aging, Benefits Check-Up and Benefits Check-UP RX help people over the age of 55 find federal, state, and local public and private programs that may pay for some of their medical care and/or prescription costs.

Medicare
Website: www.medicare.gov
This is the official Website for the Centers for Medicare and Medicaid Services (CMS), the agency responsible for Medicare Rx. The toll-free number is 800/MEDICARE.

Medicare Rights Center
888-HMO-9050
Website: www.medicarerights.org
This is an independent source of health care information and assistance for older and disabled Americans, their caregivers, and the professionals who serve them. Medicare Interactive (MI) is the one-stop source for information about health care rights, options and benefits and it is designed to help people find answers to all their Medicare questions. The website also has a list of phone numbers for each state’s “State Health Insurance Assistance Program.”

Medicare Rx Matters
Website: www.MedicareRxMatters.org
Designed to help users make decisions about the new Medicare prescription drug plan, this site has three specific portals: one for family caregivers, one for people with Medicare, and one for professionals. The Website provides an overview, easy-to-understand steps, and information to assist users in making personal decisions about Medicare prescription drug coverage.

Medicine Program
573-996-7300
Website: www.themedicineprogram.com
This program is for persons who do not have coverage either through insurance or government subsidies for outpatient prescription drugs and for those who cannot afford to purchase medications at retail prices.

RxCompare
Website: www.maprx.info
Email: info@maprx.info
RxCompare™ is a free tool developed by Medicare Access for Patients-Rx (MAPRx) to help users determine if they need to enroll in a Medicare drug plan and, if they do, to systematically compare the drug plans where they live and select the best option for their prescription needs. RxCompareTM works in tandem with Medicare’s on-line “Prescription Drug Plan Finder” and with information available from plans or 1-800-MEDICARE.

Patient Advocacy Assistance and Programs

Patient Advocate Foundation
800-532-5274
Website: www.patientadvocate.org
Patient Advocate Foundation serves as a liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relating to a patient’s condition.

Homecare Agencies

National Association for Home Care and Hospice
202-547-7424
Website: www.nahc.org
This organization for home healthcare agency providers allows family caregivers to use the Internet to access a list of member agencies across the country.

Assisted Living, Nursing Home, and Residential Care

Consumer Consortium on Assisted Living (CCAL)
703-533-8121
Website: www.ccal.org
CCAL is a national consumer-focused organization that is dedicated to representing the needs of residents in assisted living facilities and educating consumers, professionals, and the general public about assisted living issues. Family caregivers can request the publication “Choosing an Assisted Living Facility: Strategies for Making the Right Decision,” which provides helpful information and a concise checklist for those contemplating this next step.

National Citizens’ Coalition for Nursing Home Reform
202-332-2275
Website: www.nccnhr.org
This organization serves as an information clearinghouse and offers referrals nationwide for help with concerns about long-term care facilities.

CAN Senior Housing Locator
206-575-0728
Website: www.snapforseniors.com
e-mail: info@snapforseniors.com
CAN Senior Housing Locator powered by SNAPforSeniors® is a current, comprehensive and objective resource of senior housing in the U.S. Users can also search and screen for Medicare-certified home healthcare providers in their area. Download checklists and tools to help assess senior housing and care options. Exchange ideas and join discussions by participating in Groups.

Medical Transport and Hospitality Housing

National Association of Hospital Hospitality Houses (NAHHH)
800-542-9730
Website: www.nahhh.org
NAHHH represents organizations that provide lodging (and service) for families receiving medical care away from home; furnishes information about hospitality homes in the caller’s area; offers newsletter; and publishes an annual directory of facilities offering lodging.

National Patient Travel Center
800-296-1217
Website: www.PatientTravel.org
Family caregivers can receive help in locating air transportation for needy patients who need distant specialized medical evaluation, diagnosis or treatment. The National Patient Travel Helpline is available 24/7 and provides referrals to all major medical transport providers in the network.

Respite Resources

Easter Seals
800-221-6827
Website: www.easter-seals.org
Easter Seals provides a variety of services at 400 sites nationwide for children and adults with disabilities, including adult day care, in-home care, camps for special needs children and more. Services vary by site.

Faith in Action
877-324-8411
Website: www.fiavolunteers.org
e-mail: info@fiavolunteers.org
Faith in Action is an interfaith volunteer caregiving program of The Robert Wood Johnson Foundation. Faith in Action makes grants to local groups representing many faiths who volunteer to work together to care for their neighbors who have long-term health needs. There are nearly 1,000 interfaith volunteer caregiving programs across the country.

Family Friends
National Council on the Aging, Inc.
202-479-6672
Website: www.family-friends.org
This group provides respite (and other services) by matching men and women volunteers over the age of 50 with families of children who have disabilities or chronic illness. Programs are located throughout the country.

National Adult Day Services Association, Inc.
866-890-7357
Website: www.nadsa.org
This association provides information about locating adult day care centers in your local area.

National Respite Coalition (NRC)
703-256-9578
Website: www.archrespite.org/NRC.htm
NRC provides a list of states that have respite coalitions. These state coalitions then list respite services available in their state. The majority of the information is focused on helping families of children with special needs, but lately there has been an effort to enlarge their referral base to include lifespan respite information. The NRC is working to gain passage of national lifespan respite legislation.

National Respite Locator Service
800-473-1727, ext. 222
Website: www.respitelocator.org/index.htm
Access a list of sites nationwide. While the vast majority focus on respite care for families of special needs children, the service now assists programs that provide respite for caregivers of adults and the elderly.

Shepherd’s Centers of America
Website: www.shepherdcenters.org
e-mail: staff@shepherdcenters.org
The organization provides respite care, telephone visitors, in-home visitors, nursing home visitors, home health aides, support groups, adult day care, and information and referrals for accessing other services available in the community. Services vary by center.

Training for Family Caregivers

Community-based resources may offer training and classes for family caregivers. Such resources may include: your local hospital; home care agencies; Area Agency on Aging, voluntary health agencies, and county and state departments of health.

American Red Cross
202- 303-4498
Website: www.redcross.org
American Red Cross has developed training programs for family caregivers. You will need to check with your local chapter to find out if there are classes in your area.

National Family Caregivers Association
800-896-3650
Website: www.thefamilycaregiver.org
e-mail: info@thefamilycaregiver.org
CAN has developed an educational workshop to teach family caregivers to communicate more effectively with healthcare professionals. Check out the CAN Website to find out if there are workshops scheduled in your community.

Disease Specific and Health Related Agencies and Websites

This list was provided by the National Health Council
Website: www.nhcouncil.org

Alzheimer’s Association
Toll-free: 800-272-3900
Website: www.alz.org

American Autoimmune Related Diseases Association
Toll-free: 800-598-4668
Website: www.aarda.org

American Cancer Society
Toll-free: 800-ACS-2345
Website: www.cancer.org

American Diabetes Association
Toll-free patient information: 800-342-2383
Website: www.diabetes.org

American Foundation for AIDS Research
Toll-free: 800-39-AMFAR (392-6327)
Website: www.amfar.org

American Heart Association
Toll-free: 800-AHA-USA1 (242-8721)
Website: www.americanheart.org

American Kidney Fund
Toll-free Help Line: 800-638-8299
Website: www.kidneyfund.org or www.akfinc.org

American Liver Foundation
Toll-free: 800-GO-LIVER (465-4837) or 888-4HEP-USA (443-7872)
Website: www.liverfoundation.org

American Lung Association
Toll-free number to connect to local
American Lung Association offices: 800-LUNG-USA
Website: www.lungusa.org

American Pain Foundation
Toll-free: 888-615-PAIN (7246)
Website: www.painfoundation.org/

American Parkinson Disease Association
800-223-2732
Website: www.apdaparkinson.org

American Stroke Association
Toll-Free: 888-4-STROKE (478-7653)
Website: www.strokeassociation.org

American Tinnitus Association
Toll-free: 800-634-8978
Website: www.ata.org

ALS Association
Toll-free: 800-782-4747
Website: www.alsa.org

Arthritis Foundation
Toll-free 800-283-7800
Website: www.arthritis.org

Asthma & Allergy Foundation of America
Toll-free: 800-7-ASTHMA
Website: www.aafa.org

Cancer and Careers
Website: www.cancerandcareers.org
Cancer and Careers is committed to changing the face of cancer in the workplace by providing a comprehensive website, free publications, and a series of support groups and educational seminars for employees with cancer.

Cancer Financial Assistance Coalition
Website: www.cancerfac.org
Phone: 800-813-HOPE (813-4673)
CancerCare, a member of the coalition. Search the website by location or diagnosis to find organizations that provide financial help for your specific situation.

Cancer Research and Prevention Foundation
Toll-free: 800-227-CRFA (227-2732)
Website: www.preventcancer.org

Crohn’s & Colitis Foundation of America
Toll-free: 800-343-3637 (to order brochures and for general information)
Website: www.ccfa.org

Cystic Fibrosis Foundation
800-FIGHT CF (344-4823)
Website: www.cff.org

Epilepsy Foundation
Toll Free: 800-332-1000
Website: www.epilepsyfoundation.org

The Foundation Fighting Blindness
Toll-free: 888-394-3937
Website: www.blindness.org

Huntington’s Disease Society of America
Toll-free: 800-345-HDSA
Website: www.hdsa.org

The Leukemia & Lymphoma Society
Toll-free: 800-955-4572
Website: www.leukemia-lymphoma.org

Lupus Foundation of America
Toll-free information request line: 800-558-0121
Website: www.lupus.org

March of Dimes Birth Defects Foundation
March of Dimes Resource Center

Toll-free: 888-663-4637
Website: www.modimes.org

Mesothelioma Prognosis Network
Toll-free: 888-797-2649
Website: www.mesotheliomaprognosis.com

Mesothelioma Web
Toll-free: 877-367-6376
Website: www.mesotheliomaweb.org

National Down Syndrome Society
Toll-free: 800-221-4602
Website: www.ndss.org

National Hemophilia Foundation
Toll-free: 800-42-HANDI (424-2634)
Website: www.hemophilia.org

National Mental Health Association
Toll Free: 800-969-NMHA (6642)
Website: www.nmha.org

National Multiple Sclerosis Society
Toll-free: 800-FIGHT-MS (344-4867)
Website: www.nationalmssociety.org or www.nmss.org

National Organization for Rare Disorders
800-999-6673
Website: www.rarediseases.org

National Osteoporosis Foundation
202-223-2226
Website: www.nof.org

National Psoriasis Foundation
Toll-free: 800-723-9166
Website: www.psoriasis.org

National Sleep Foundation
202-347-3471
Website: www.sleepfoundation.org

Osteogenesis Imperfecta Foundation
Toll-free: 800-981-BONE (2663)
Website: www.oif.org

The Paget Foundation
Toll-free: 800-23-PAGET (237-2438)
Website: www.paget.org

Partners Against Pain
888-726-7535
Website: www.partnersagainstpain.com

Sjogren’s Syndrome Foundation
Toll-Free: 800-475-6473
Website: www.sjogrens.org

Spina Bifida Association of America
Toll-free: 800-621-3141
Website: www.sbaa.org

Tourette Syndrome Association, Inc.
Toll-free: 888-4-TOURET (486-8738)
Website: www.tsa-usa.org

Tuberous Sclerosis Alliance
Toll-free: 800-225-6872
Website: www.tsalliance.org

United Ostomy Association
Toll-free: 800-826-0826
Website: www.uoaa.org

United Cerebral Palsy
800-872-5827
Website: www.ucp.org

New & Noteworthy
BY LEZLIE PATTERSON Imagine being dared by Barry Manilow to sing “Copacabana,” by Suzanne Somers to work out beside her, or by the Chippendales to mimic their dance moves – all on stage in front of a crowd. Those are a few of the dares that will be issued at
See how WE Dare2Care! Join us June 24 for the Leeza Gibbons’ Dare2Care Fair and show YOUR support for our #caregivers! LeezaGibbonsDare2Care.com #dare2care #actsofkindness #leezascareconnection
Our LCC Superstars knocked it out the park with this Leeza Gibbons’ Dare2Care Fair commercial airing on WIS!! Thank you to all who participated! Find out more at LeezaGibbonsDare2Care.com #dare2care #actsofkindness #leezascareconnection  
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